ALL PROCEEDS FROM INSIGHT GO TO SIUAF

Shake It Up Australia Foundation is a not-for-profit organisation established in 2011 and in partnership with The Michael J. Fox Foundation (MJFF) promotes and funds Parkinson’s disease research in Australia aimed at better treatments and ultimately a cure. INSIGHT Summit has already raised $20,000 from tickets for SIUAF.

The foundation was established by Clyde Campbell, a father of three and business owner who was diagnosed with Parkinson’s disease in 2009 at the age of 44. Clyde set out to find out as much as he could about the disease and determine what he could do in a practical sense to assist. His search led him to the Michael J. Fox Foundation for Parkinson’s Research in the United States and the remarkable work they do to fund medical research targeted at finding better treatments on the path to a cure for Parkinson’s disease.

TRAIN BRAVE WITH PD WARRIOR

The 2018 INSIGHT SUMMIT has been brought to you by PD Warrior, founded by Specialist Neurological Physiotherapist, Melissa McConaghy, FACP. Melissa has been working with Parkinson’s patients for 17 years!

 

PD Warrior is a small organisation that continues to punch well above it’s weight. Developed as a rehabilitation program in Australia, it has expanded rapidly and is now run Internationally in four countries and counting! Our aim is to specifically help people slow the symptom development of their Parkinson’s down.

What sets PD Warrior apart and delivers such great success as a program are the four underpinning pillars:

  1. Neuro-active exercise
  2. Life-long behaviour change and adherence to exercise
  3. Education and empowerment
  4. Support and Community
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UNITING THE GLOBAL PARKINSON'S COMMUNITY

#UniteForParkinsons is a global campaign that aims to raise awareness and understanding of Parkinson’s and grow an active global Parkinson’s community. It was co-founded by Parkinson’s UK and the EPDA (European Parkinson’s Disease Association. They have also teamed up with Parkinson’s organisations in Africa, Parkinson’s Australia, India and the US, including the Michael J Fox Foundation and the World Parkinson Coalition to help support the campaign.

Last year, people from 90 countries used the #UniteForParkinsons hashtag, and in 2018 we want to make an even bigger noise. With a bigger and more active community, we can encourage a bigger focus on Parkinson’s and the need for more collaborative research around the world.

So help us on 11 April 2018 – World Parkinson’s Day – to show the world what living with Parkinson’s truly means.

THE EUROPEAN PARKINSON'S DISEASE ASSOCIATION

The European Parkinson’s Disease Association (EPDA) is the only European Parkinson’s umbrella organisation, championing and working with the global Parkinson’s community for 25 years. The EPDA represents national Parkinson’s associations – that collectively have more than 120,000 members in nearly 30 countries across Europe – and advocate for the rights and needs of more than 1.2 million people with Parkinson’s and their families.

As the leading voice for Parkinson’s in Europe, they provide information and resources to all Parkinson’s stakeholders, raise awareness of the disease’s complexities and impact, and advocate for concrete policy change that benefits the Parkinson’s community.

The EPDA’s vision is to enable all people with Parkinson’s to live a full life, while supporting the search for a cure.

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YOUR ONLINE PARKINSON'S MAGAZINE

Parkinson’s Life, is an online ‘lifestyle’ magazine for people affected by Parkinson’s disease. They are a voice for the international Parkinson’s community, which means anyone with an interest in the disease including people with Parkinson’s and their families, carers and healthcare professionals.

By publishing high-quality content focused on this global community, Parkinson’s Life aims to be a leading platform for the sharing of personal stories, expert opinions, resources, tools and information about good Parkinson’s practices from around the world.

They hope to increase awareness, inspire advocacy and challenge existing mindsets, ultimately achieving our goal of enabling all people with Parkinson’s to live a full life.

IN IT TOGETHER IN THE UK

Every hour, two people in the UK are told they have Parkinson’s. Because Parkinson’s UK are there, no one has to face Parkinson’s alone.

They bring people with Parkinson’s, their carers and families together via our network of local groups, their website and free confidential helpline

Specialist nurses, Parkinson’s UK supporters and staff provide information and training on every aspect of Parkinson’s.

As the UK’s Parkinson’s support and research charity they are leading the work to find a cure. They also campaign to change attitudes and demand better services.

Parkinson’s UK’s work is totally dependent on donations. Help them to find a cure and improve life for everyone affected by Parkinson’s!

PUK are all about Exercise too!! …

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Parkinson’s Australia is the national peak body and charity representing more than 70,000 Australians living with Parkinson’s. They advocate for the needs of people living with Parkinson’s, and for their families and carers.

Parkinson’s Australia represents, at the national level, the interests of its federation of state and territory members on all matters relating to Parkinson’s and carer issues.

The role of Parkinson’s Australia is to advocate on the basis of evidence-based policy, promote awareness of Parkinson’s and support education about Parkinson’s in the community and with Clinicians.

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WFOT promotes occupational therapy as an art and science internationally. The Federation supports the development, use and practice of occupational therapy worldwide, demonstrating its relevance and contribution to society.

WFOT has been in official relations with the World Health Organisation since 1959, undertaking a collaborative work program with the aim of improving world health.

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GET BETTER AND STAY BETTER WITH EXERCISE!

The PWR Mission … To develop and implement worldwide access to Parkinson disease-specific neuroplasticity-principled programming that holds promise to slow disease progression, improve symptoms, restore function, and increase longevity and quality of life.

Founder & INSIGHT Speaker, Dr. Becky Farley received a PhD in Neuroscience from the University of Arizona, a Master of Science in Physical Therapy from the University of North Carolina, and a Bachelor of Physical Therapy from the University of Oklahoma. She has over 30 years of experience in neurorehabilitation, and is currently the CEO/Founder of the nonprofit Parkinson Wellness Recovery | PWR!. and a Physiology Associate at the University of Arizona. During her post-doc, Dr. Farley studied bradykinesia, developed the LSVT® BIG exercise program, and completed an NIH funded randomized clinical trial documenting its’ short-term efficacy (3-months).

HealthTimes is the leading careers website for Australian health professionals providing Australian health professionals with access to exciting employment, education and professional development resources.

For health professionals, access the content you need online, via the HealthTimes magazine, and a range of digital publications promoting career, education and professional development opportunities.

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HELP EVAN REACH 100 MILLION!

Founder of Push Ups 4 Parkinson’s US, Evan Cutler, is doing 1 Million Push Ups for Parkinson’s awareness and challenging the world to do 100 Million Push Ups and raise $100 Million dollars.

Both Evan’s grandfather and father had Parkinson’s disease and his  endeavor is to support the Parkinson’s community and caregivers everywhere.

To help fund research, the cure, caregivers and mental health, join the push up challenge at www.pushups4parkinsons.org

EPTC gives Parkinson patients AND their family to get effective therapy and counselling.

It is a unique international centre, created and backed by leading researchers, associations, Neurologists, focusing on People with Parkinson and their family to supply research based effective multilevel therapy in a non threatening environment and showing how to improve quality of life.

The team works across Europe to change attitudes, perceptions and actions of associations, hospitals and governments to support the Parkinson family using a supportive and not patient model.

DANCE LIKE THERE IS NO TOMORROW!

Dance for PD® is a collaboration between the Mark Morris Dance Group (MMDG) and the Brooklyn Parkinson Group (BPG). MMDG/BPG started offering free dance classes for people with Parkinson’s in 2001, after BPG’s Executive Director Olie Westheimer approached MMDG with the initial idea for a class. Since 2005, the two organizations have expanded the Dance for PD® program into more than 100 other communities around the world by engaging participants in Dance for PD® master classes, training teachers through intensive workshops, and nurturing relationships among organizations so that ongoing classes are available to local communities.

The Dance for Parkinson’s Australia program started through an initial Dance for PD® presentation at the National Parkinson’s Conference in Brisbane in 2012. Since then, Australian Program Coordinator Erica Rose Jeffrey has worked with the dance and Parkinson’s communities to share the joys of dance classes for people with Parkinson’s. Working with Dance for PD® founding teacher and Program Director David Leventhal, the first Australian teacher training workshops were offered in May of 2013 in Sydney and Brisbane at Queensland Ballet.

The Quest for Life Foundation provides practical skills and strategies for people to create peace and resilience in their lives.

The Quest for Life Foundation was established in 1989 by Petrea King. Up until 1995 the Foundation was based in Sydney where it hosted hundreds of support and meditation groups for people living with cancer, grief, AIDS, depression, anxiety and other traumas as well as teaching programs. In 1995, Petrea and the work of Quest for Life moved to Bundanoon in the beautiful Southern Highlands of NSW.

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HEIDI REYNOLDS

Founder of Start Living Today PD UK

Heidi was diagnosed with Parkinson’s in July 2014 age 37. Following medical retirement from the Metropolitan Police where Heidi held specialist roles at New Scotland Yard, worked on 2012 Olympic Games & managed a community team of over 100 staff, however, she knew she still had something to give.

Heidi is passionate about highlighting there is life beyond diagnosis. Aspirations can be achieved. She founded the Worldwide Community Network Start Living Today PD. SLTPD has three words at its core, Positive Motivated Happy. Exercise plays a vital role as do connections. Connections with others & new or existing hobbies, Heidi believes these elements along with dovetailed working relations with your healthcare team will give the best quality of life. A brand new website is about to launch too following amazing public support through crowdfunding.

Start Living Today PD already has 5.5k followers in just under 2 years & is going from strength to strength. Heidi is incredibly grateful for everyone’s support & belief. Heidi is a Parkinson’s Ambassador for MedLearn the NHS/Government conduit & i-Prognosis innovative European project looking at Parkinson’s early intervention through technology.

ODSTOCK MEDICAL

What is FES?

Functional Electrical Stimulation (FES)FES is small pulses of electrical stimulation to the nerves that supply paralysed muscles.

The stimulation is controlled in such a way that the movement produced provides useful function.

The technique is used as an aid to assist walking as well as practising functional movements for therapeutic benefit.

The most common use of FES is for people with drop foot. Read more about drop foot here.

Click here to read our clinical evidence.

How does FES work?

In simple terms, FES works like this to help with drop foot:

  • Our Odstock Dropped Foot Stimulator (ODFS®) sends signals to the self-adhesive electrodes that are placed on the skin over the nerves.
  • The stimulator creates small electrical pulses. This causes the muscles in your leg to contract and moves your joints.
  • A small footswitch in your shoe times the stimulation to your walking.

Odstock Medical Ltd (OML)

We provide a range of neuromuscular stimulators designed to improve the functional ability of people with a neurological condition.

The devices have been developed over many years of collaboration between clinical engineers, clinicians and patients at the National Clinical FES Centre, Salisbury NHS Foundation Trust.

Click here to find out more about OML.

Please note: Some of the devices (ODFS® & O2CHS) can only be applied by qualified trained medical personnel. All personnel must be approved by the National Clinical FES Centre.

If you are interested in becoming qualified FES clinician, see our FES courses page.

FES equipment is not available to the general public without a referral from their GP or consultant.

Smovey is a dynamic fitness product. It provides a dynamic upper body workout that gets you fit while helping to burn more calories and stabilize your back and spine. Each Smovey ring weighs 1 lb and includes four metal balls that run freely inside the hollow plastic tubes.

HOW DOES IT WORK?

Swinging the Smovey rings moves the balls inside the rings creating a varying resistance of up to 10 lbs that is dynamically adjusted based on your strength and condition.

The movement of the balls also creates a vibration of 60Hz, which is transmitted through the handles of the Smovey rings to the palms of the hand. The vibration acts on the meridians in your palms harmonizing the flow of Qi (energy) throughout the body, providing an exceptional healing effect while working out, leaving you relaxed and revitalized.